You’ve landed here on Nora's fundraising page to benefit the 2024 Race for Every Child!
Thanks to his amazing doctor's at Children's National, Brian is doing fantastic and is so excited to run in this year's kids dash. He is about to start second grade and still plays soccer. He even learned how to swim! This would not have been possible without his amazing team of doctor's.
We are so excited that this year's race will be in-person at Freedom Plaza in DC. We'd love for you to join our team in-person or virtually! If you’d like to join the team – register as a participant and join team BG Brave. Since it's about the kids, we plan to do the kids dash. Make sure to register the whole family.
If you can't join us on the big day but you'd still like to support our team, that’s great too! Just hit the big Donate button in the upper right-hand corner. Every dollar makes a difference!
Last year, I discovered that the biggest impact is when YOU share this link with family and friends. Please consider sharing the link in at least one way (social media, email, distribution list, snail mail, text, any way you'd like)
For the past three years, we participated virtually and were able to raise over $30,000. We are BLOWN away by this. The truly amazing part is that our neuro-oncologist consulted us to choose specifically how to use this money. Since Brian's tumor type is so rare and unknown, we chose for donations to be made to directly support the research of pediatric brain tumors. It’s incredible that we can directly support such important research that will hopefully lead to more pediatric brain tumor cures in the future.
Read on to hear more about Brian's story.
Nora, Sloane & the Brian's
In January 2020, the doctors at Children's discovered that Brian had a brain tumor. Days later an extraordinary neurosurgeon successfully removed Brian's tumor. However, due to the uncertain nature of the tumor, Brian received treatment to ensure the tumor does not grow back. With the help of the doctors, nurses, child life specialists and support staff at Children's, Brian completed six intensive rounds of chemotherapy, 33 rounds of proton radiation and countless blood/platelet transfusions. He went on to receive less intensive chemo at home for about one year.
After finishing the chamber, the brain damage progressed and caused further atrophy to the left side of his body. He lost the ability to walk more than a few steps. Through the help of his incredible rehab doctor, Dr. Shin, he was able to complete a 6-week intensive occupational, physical and speech therapy program where he relearned how to walk. Dr. Shin has spent countless hours researching new devices, therapies and even surgery to ensure Brian is progressing every day.
Since we've spent countless days, nights, holidays and milestones in the hospital, we are fortunate that it is such a warm and loving place for Brian. As a parent of a child battling cancer, it's very eye opening how valuable these resources are and how important it is that they continue.