I'm fundraising to help Ben and others diagnosed with Labrune Syndrome
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Our Family started this fundraising page to help support our son Ben and others diagnosed with the rare genetic disorder, Labrune Syndrome. Will you join us in supporting them by donating to Children’s National, specifically the Neuro-Metabolic Research Fund? For nearly 150 years, Children’s National has been serving kids – pursuing live-saving research and providing world-class medical care to every child, from every background and walk of life, regardless of insurance or ability to pay. Please join us in helping support the research to what could very well be a life-saving outcome for our son Ben and others diagnosed with this genetic disorder.
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