The Stephen Monaco Nutrition and Genetics Fund

Support The Stephen Monaco Nutrition and Genetics Fund!
Our fundraising page was created by my husband Tom and me in 2015 to celebrate the birthday of a special boy whose life touches many.  Due to a late diagnosis of a rare metabolic disorder, isovaleric acidemia, our son Stephen suffered a severe brain injury at age 3 ½ resulting in significant disabilities and medical issues... preventable had he benefited from comprehensive newborn screening at birth. All babies now benefit thanks to changes in NBS laws nationwide impacted by Stephen's life. 

 Through this fund, you can help improve life for others living with similar rare metabolic disorders. Rare disorders like Stephen's and his sister Caroline affect approximately 1 in 100,000 births and require the highly specialized expertise of the specialists and their team in genetics for their care. To date, we have raised over a quarter of a million dollars for this amazing group of specialists thanks to the many kind hearts and generous donations over the past five years. all in Stephen's honor.


 



 

 

Stephen and Jana Monaco with Dr. Bear at their Annual Charity Golf Event
Stephen and Jana Monaco with Dr. Bear at their Annual Charity Golf Event

 


Welcome to The Stephen Monaco Nutrition and Genetics Fund's Page

 

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Donations for The Stephen Monaco Nutrition and Genetics Fund Monaco

DONORS
  1. Leadiant Biosciences, Inc. - $5,000.00
  2. Donald Holmes - $500.00
  3. Ms. Cleta Schmitt - $250.00
  4. Anonymous - $100.00
  5. Robert Sues - $100.00
  6. Chip&Sandy Albright - $100.00
  7. ANA FELIX - $100.00
  8. Troy Reynolds - $50.00
  9. Jaime Wright - $35.00
$1,000.00
$6,235.00
 
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